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Resources

Resources

The FASD Center links to a broad range of organizations and resources with FASD information. We encourage sites with an interest in FASD to link to us.

Table of Contents

Federal Agencies
National Organizations
State Organizations
International Organizations
Treatment and Referral Resources
Family and Support Groups
Research Organizations

Federal Agencies

Substance Abuse and Mental Health Services Administration (SAMHSA)
The Substance Abuse and Mental Health Services Administration's (SAMHSA) mission is to reduce the impact of substance abuse and mental illness on America's communities. In order to achieve this mission, SAMHSA has identified 8 Strategic Initiatives to focus the Agency's work on improving lives and capitalizing on emerging opportunities.

SAMHSA was established in 1992 and directed by Congress to target effectively substance abuse and mental health services to the people most in need and to translate research in these areas more effectively and more rapidly into the general health care system. Over the years SAMHSA has demonstrated that – prevention works, treatment is effective, and people recover from mental and substance use disorders. Behavioral health services improve health status and reduce health care and other costs to society. Continued improvement in the delivery and financing of prevention, treatment and recovery support services provides a cost effective opportunity to advance and protect the Nation's health.

SAMHSA Store
SAMHSA has a new “store” for your publications and product needs–manuals, brochures, videos, public service announcements, and more. Find resources by substance, condition, or research topic area. Thereare hundreds of useful topics to choose. If you can’t find what you’re looking for, call SAMHSA at 1-877-SAMHSA-7 for assistance 24/7.

SAMHSA’s new Store replaces the National Clearinghouse on Alcohol and Drug Information, the National Mental Health Information Center, and the SAMHSA Health Information Network.

Native American Center for Excellence (NACE)
Resource Library
NACE is a national resource center for up-to-date information on American Indian and Alaska Native (AI/AN) substance abuse prevention programs, practices, and policies. An initiative of the Substance Abuse and Mental Health Services Administration (SAMHSA), NACE also provides training and technical assistance support for urban and rural prevention programs serving AI/AN populations. For more information on NACE programs and initiatives, please visit the Resource Library.

Stop Underage Drinking  Exit Disclaimer Graphic
StopAlcoholAbuse.Gov is a comprehensive portal of Federal resources for information on underage drinking and ideas for combating this issue. People interested in underage drinking prevention–including parents, educators, community-based organizations, and youth–will find a wealth of valuable information here.

Centers for Disease Control and Prevention (CDC)
CDC is the nation′s premier health promotion, prevention, and preparedness agency and a global leader in public health. It remains at the forefront of public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities, and environmental health threats. CDC is globally recognized for conducting research and investigations and for its action-oriented approach. CDC works with states and other partners to provide a system of health surveillance to monitor and prevent disease outbreaks (including bioterrorism), implement disease prevention strategies, and maintain national health statistics.

CDC FASD Site
CDC addresses fetal alcohol syndrome (FAS) through the activities of its FAS program, which focuses on prevention. In addition, diagnostic guidelines PDF Icon are now available online in PDF format.

Fetal Alcohol Spectrum Disorders Mobile App (Centers for Disease Control and Prevention)
This application has been designed by the Centers for Disease Control and Prevention (CDC) as a way for users to access the latest information related to alcohol and pregnancy and Fetal Alcohol Spectrum Disorders (FASD). The application allows the user to view content directly from an iPhone, iPod Touch, or iPad. From women planning a pregnancy to health care providers to families and educators, this application will help users find and share critical guidance on the prevention, recognition, and treatment of FASD.

Women and Alcohol Exit Disclaimer Graphic
Over 25% of adults over age 15 drink alcohol at risk levels more than 4 times per year. At-risk alcohol use results in multiple health effects, including unplanned pregnancy, sexually transmitted infections, altered fertility, menstrual disorders and breast cancer, and a greater risk of psycho-social problems such as loss of primary relationships, sexual assault and depression. This web site includes clinical tools for screening and brief intervention, educational materials for the clinician, patients and the general public, a wide array of resources including a treatment locator, and up to date news and journal articles. This web site is supported through funding from the Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities.

National Institute on Alcohol Abuse and Alcoholism (NIAAA)
NIAAA supports research to improve diagnosis and assessment of impairment and disability and to develop tools to enhance academic and daily living skills. Areas of research include screening, diagnosis, and treatment of FASD.

Alcohol Policy Information System
The Alcohol Policy Information System provides information on alcohol-related Federal and State policies. It is sponsored by the National Institute on Alcohol Abuse and Alcoholism as a tool for researchers.

Interagency Coordinating Committee on Fetal Alcohol Syndrome (ICCFASD)
ICCFASD is hosted by the National Institute on Alcohol Abuse and Alcoholism. It includes representatives from various branches of the Department of Health and Human Services, and the Departments of Education and Justice. ICCFASD members work to exchange information and coordinate Federal FAS strategies and programs. Here are some of their most recent announcements:

The Office on Women's Health (OWH)
The Office on Women's Health (OWH) was established in 1991 within the U.S. Department of Health and Human Services. Its Vision is to ensure that "All Women and Girls are Healthier and Have a Better Sense of Well Being." Its mission is to "provide leadership to promote health equity for women and girls through sex/gender-specific approaches." The strategy OWH uses to achieve its mission and vision is through the development of innovative programs, by educating health professionals, and motivating behavior change in consumers through the dissemination of health information.

Women's Health Resources Alcohol, Tobacco, and Substance Abuse
This resource was created in a partnership between the National Library of Medicine Outreach and Special Populations Branch and the National Institutes of Health Office of Research on Women’s Health. The purpose of this page is to present topics pertaining to women’s health collected to support the mission of the Office of Research on Women’s Health to promote research in the field.

MentalHealth.gov (U.S. Department of Health and Human Services)
This Web site provides information and resources for individuals struggling with mental health issues, and also for friends and family members, educators, and other community members. Specifically, the site features information regarding the basic signs of mental health problems, how to talk about mental health, and ways to find help.

Health Resources and Services Administration(HRSA) Maternal and Child Health Bureau(MCHB)
Within the Maternal and Child Health Bureau, the Division of Perinatal Systems and Women's Health conducts activities related to FAS prevention.

Health Insurance Marketplace
The Health Insurance Marketplace was launched on October 1, 2013 to comply with the Affordable Care Act (ACA). The Affordable Care Act is a United States federal statute signed into law by President Barack Obama on March 23, 2010. The Health Insurance Marketplace allows you to find quality health coverage. The Marketplace can assist you if you do not have coverage now or if you have it, but want to consider other options. In addition, you can learn if you can lower your insurance costs based on your income by comparing coverage options side by side. Coverage for consumers can begin as early as January 1, 2014.

Indian Health Service (IHS)
The Indian Health Service Behavioral Health Program strives to eliminate alcoholism and other drug dependencies and improve the health care of American Indians and Alaska Natives.

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National Organizations

The Arc of the United States  Exit Disclaimer Graphic
The Arc, a network of more than 700 state and local chapters across the country, is a leading national resource for people with intellectual and developmental disabilities. A member of the CFE’s Expert Panel, the Arc implements a number of programs funded by grants and other sources, including: the Self-Advocates with FASD in Action (SAFA), supported by SAMHSA; the School to Community Transition Initiative for youth with intellectual and developmental disabilities; and the eXplore eRecycling Initiative to help support employment opportunities in the e-recycling fields for people with intellectual and developmental disabilities. SAFA, which includes over 20 members, is a new initiative to connect people with an FASD, improve quality of life for people with an FASD, and educate others about FASD and how to prevent it through the work of the SAFA members.

The American Congress of Obstetricians and Gynecologists (ACOG)  Exit Disclaimer Graphic
Founded in 1951 in Chicago, Illinois, ACOG has over 52,000 members and is the nation's leading group of professionals providing health care for women. Now based in Washington, DC, it is a private, voluntary, nonprofit membership.

Court Appointed Special Advocates for Children (CASA) Exit Disclaimer Graphic
The National CASA Association is a network of 946 programs that are recruiting, training and supporting volunteers to represent the best interests of abused and neglected children in the courtroom and other settings.

CASA volunteers are appointed by judges to watch over and advocate for abused and neglected children, to make sure they don’t get lost in the overburdened legal and social service system or languish in inappropriate group or foster homes. Volunteers stay with each case until it is closed and the child is placed in a safe, permanent home. For many abused children, their CASA volunteer will be the one constant adult presence in their lives.

Zero to Three Exit Disclaimer Graphic
Zero to Three is the National Center for Infants, Toddlers, and Families. As such, it is a leader in early childhood development and provides a range of support to state administrators and local providers across a range of disciplines who work to improve the lives of infants and toddlers. Zero to Three also funds a range of grants that address FASD, including: the Safe Babies Court Teams Project which involves specialized courts and community court teams that develop strategies to support children, including those with FASD and their mothers. These teams are currently active in 10 sites across the country, including: Cherokee, North Carolina; Des Moines, Iowa; Douglasville, Georgia; Hattiesburg, Mississippi; Honolulu, Hawaii; Little Rock, Arkansas; New Haven, Connecticut; New Orleans, Louisiana; Omaha, Nebraska; and San Francisco, California. Zero to Three provided a presentation on the strategies used in this program at the CFE’s BFSS Conference in 2012.

March of Dimes Exit Disclaimer Graphic
Birth Defects Foundation March of Dimes researchers, volunteers, educators, outreach workers, and advocates work together to address prematurity, birth defects, and low birthweight.

National Organization on Fetal Alcohol Syndrome (NOFAS) Exit Disclaimer Graphic
NOFAS isa nonprofit organization dedicated to eliminating alcohol-related birth defects and improving the quality of life for individuals with FASD and their families.

National Association for Children of Alcoholics (NACoA) Exit Disclaimer Graphic
The mission of the NACoA is to advocate for all children and families affected by alcoholism and other drug dependencies. They help kids hurt by parental alcohol and drug use by working to raise public awareness; providing leadership in public policy at the national, state, and local levels; advocating for appropriate, effective and accessible education and prevention services; and facilitating and advancing professional knowledge and understanding.

National Birth Defects Prevention Network (NBDPN) Exit Disclaimer Graphic
NBDPN is a group of individuals involved in birth defects surveillance, research, and prevention. The State directory provides contact and program information, including FASD surveillance information.

National Council on Alcoholism and Drug Dependence (NCADD) Exit Disclaimer Graphic
NCADD fights the stigma and the disease of alcoholism and other drug addictions. Activities include community prevention and education, advocacy, and resource centers.

National Healthy Mothers, Healthy Babies Coalition (HMHB) Exit Disclaimer Graphic
HMHB promotes public awareness and education about prenatal health, develops networks for sharing information, and distributes public and professional education materials.

National Association of County Behavioral Health and Developmental Disability Directors (NACBHDD)  Exit Disclaimer Graphic
NACBHDD is the national voice for county and local behavioral health and developmental disability authorities in Washington, DC. NACBHDD brings the unique perspective of its members to Congress and the Executive Branch and promotes national policies that recognize and support the critical role counties play in caring for people affected by mental illness, addiction, and developmental disabilities.

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State Organizations

Alaska Office of Fetal Alcohol Syndrome  Exit Disclaimer Graphic
Alaska's FAS project is a comprehensive, integrated effort encompassing FASD prevention, screening, diagnosis, and services.

Colorado Fetal Alcohol Syndrome Prevention Program  Exit Disclaimer Graphic
The Fetal Alcohol Syndrome/Alcohol Tobacco and Other Drug Prevention Outreach Project (POP) is a collaborative effort involving numerous community sectors and health, education, social service, law enforcement, and community groups.

Michigan Department of Community Health Fetal Alcohol Syndrome Program
The goals of the fetal alcohol syndrome (FAS) program are to reduce cases of FAS, provide timely diagnosis, and assist with needed support services. Services are provided through Centers of Excellence, community outreach and education projects, and training and consultation.

Minnesota Organization on Fetal Alcohol Syndrome (MOFAS) Exit Disclaimer Graphic
The University of Washington’s Fetal Alcohol and Drug Unit and The Minnesota Organization on FAS (MOFAS) are two leaders for diagnostic services related to FASD. They serve as key resources nationwide and regionally for information on FASD diagnostic services as well as provide diagnostic services within their own regions. In addition, these two entities have been involved in programs that have been implemented in their states as well as nationally. The University of Washington is the developer of the Parent-Child Assistance Program (P-CAP) which is being implemented across the State of Washington, and also was involved in SAMHSA’s CFE initiative in California and Michigan. MOFAS was the first state organization solely designated to address FASD in 1998. The CFE has collaborated with MOFAS on the development of a curriculum for juvenile justice personnel (“Tools for Success”) and has collaborated with both MOFAS and the Women’s Services Coordinator of the Minnesota Department of Human Services (DHS) in improving outcomes for women’s residential substance abuse treatment and recovery programs by identifying women with a possible FASD, modifying their treatment approaches, and identifying children of these women who may also have an FASD. MOFAS is a leader in diagnostic services.

New York State Office of Alcoholism and Substance Abuse Services (OASAS)
This site includes information on FASD, model programs, resources, links, news items, and a calendar.

Ohio's FASD Initiative Exit Disclaimer Graphic
The Ohio FASD Statewide Steering Committee is a partnership that includes representatives from 9 state agencies, 3 universities, providers and parents. Our mission is to establish efficiency in state systems resource allocation, coordination of services, and augmentation of available resources to address FASD. www.notasingledrop.org  Exit Disclaimer Graphic is Ohio's Web site about Fetal Alcohol Spectrum Disorders (FASD). The mission of Ohio’s FASD Web site is to educate the public, women, parents, educators, physicians and others about the consequences of drinking while pregnant and to provide a state-wide system of care to those affected by FASD.

Texas Office for Prevention of Developmental Disabilities (TOPDD) Exit Disclaimer Graphic
TOPDD coordinates activity among the many State and private agencies that work to prevent developmental disabilities. TOPDD appointed the Fetal Alcohol Syndrome Consortium to address public awareness and education about fetal alcohol syndrome.

Washington State Fetal Alcohol Syndrome Interagency Work Group (FASIAWG) Exit Disclaimer Graphic
FASIAWG was established in 1995 to coordinate and enhance Washington State FASD screening, diagnosis, intervention, prevention, surveillance, and training programs. The FASIAWG represents a diverse spectrum of programs designed for individuals with FASD and their families. This network of educational, research, and clinical services responds to the legislative mandate to ensure coordination of identification, prevention, and intervention programs for children who have FASD and for women at high risk of having children with FASD.

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International Organizations

Australian National Organization for Foetal Alcohol Syndrome and Related Disorders (NOFASARD) Exit Disclaimer Graphic
This site provides brochures and reports on fetal alcohol spectrum disorders, including information specific to Australia.

Canadian Northwest FASD Partnership Exit Disclaimer Graphic
This is a partnership site for seven Canadian provinces that work on FASD prevention, intervention, care, and support. It includes highlights of campaigns and initiatives, FASD events, regional researchers, and messages from all seven provincial Premiers.

European Birth Mother Support Network Exit Disclaimer Graphic
The European Birth Mother Support Network is a network of women who drank alcohol during pregnancy and may have a child or children with Foetal Alcohol Spectrum Disorders (FASD). The network is a place where mothers can share their experience and support each other. Our goal is to educate, increase understanding and support for birth mothers in Europe.

FAS Aware UK Exit Disclaimer Graphic
This site is designed to raise awareness and provide information and support for people affected by or interested in fetal alcohol syndrome.

FAS Europe Luxembourg  Exit Disclaimer Graphic
This site provides information on fetal alcohol spectrum disorders in English, French, and German.

FASLink  Exit Disclaimer Graphic
FASlink is the Canadian Fetal Alcohol Syndrome Internet support, information, advocacy, and discussion forum. FASlink maintains a discussion listserv serving hundreds of families and professionals across Canada and in other countries.

Fetal Alcohol Network New Zealand (FANNZ) Exit Disclaimer Graphic
The people who make up the Fetal Alcohol Network New Zealand come from within families living with fetal alcohol spectrum disorder (FASD) and a wide range of professionals involved with the health, education, justice and social services sectors. Through its contract with the New Zealand Ministry of Health, Alcohol Healthwatch supports the coordination of the FANNZ network and related activities. Alcohol Healthwatch is a Charitable Trust that works to reduce alcohol related harm in communities through effective health promotion. FANNZ communication is maintained through a monthly email update and periodic meetings to advance community action and support.

Fetal Alcohol Spectrum Disorders and the Justice System  Exit Disclaimer Graphic
The FASD Ontario Justice Committee (members of the FASD Stakeholders of Ontario) has developed this website with funding from the Public Health Agency of Canada, as a resource for justice system professionals and others who are grappling to understand FASD. We hope that this website will put case law, legal resources, background information, and practical tips close at hand. We also hope that it will offer strategies for dealing with the unique problems presented by offenders, victims and witnesses with FASD in compassionate, fair and effective ways.

Fetal Alcohol Support Ireland Exit Disclaimer Graphic
FAS Ireland is dedicated to raising awareness about FASD, helping to reduce the incidence of FASD, and supporting families, caregivers, and individuals affected by FASD.

Fetal Alcohol Syndrome Meet Up Exit Disclaimer Graphic
This site provides a way for individuals to meet up with other local parents and caregivers of children with FAS.

National Database of FAS and Substance Use During Pregnancy Resources (Canada) Exit Disclaimer Graphic
This is a database of Canadian resources related to prevention, intervention, and identification of fetal alcohol syndrome and other substances that can harm fetal development.

Netherlands Fetal Alcohol Syndrome Foundation Exit Disclaimer Graphic
The Netherlands FAS Foundation provides information about FAS to the public, provides information about FAS and support to families and caregivers, brings concerns to the attention of the government, institutions, and companies, and promotes scientific research. The site is available in Dutch (Nederlands).

Provincial Outreach Program for FASD Exit Disclaimer Graphic
The mandate of the Provincial Outreach Program for FASD is to increase teachers' capacity to meet the educational needs of students with an FASD. Their goals include building district capacity to serve students in their home school districts, facilitating the sharing of best practices, developing online capacity, and serving as a liaison to government agencies.

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Treatment and Referral Resources

Substance Abuse Treatment Facility Locator
The Substance Abuse and Mental Health Services Administration provides this online resource. The treatment facility locator lists private and public facilities that are licensed, certified, or otherwise approved.

CAPTS
SAMHSA's Collaborative for the Application of Prevention Technologies (CAPT) is a national substance abuse prevention training and technical assistance (T/TA) system dedicated to strengthening prevention systems and the nation’s behavioral health workforce. For information on other prevention resources, please visit www.samhsa.gov/prevention .

CHOICES
Project CHOICES targets women at risk of having an alcohol-exposed pregnancy before they become pregnant. Most women do not realize they are pregnant until well into the first trimester, and many drink alcohol during this time. Project CHOICES focuses on reducing drinking and preventing pregnancy through contraception with women 18 to 44 who are sexually active and drinking alcohol at risk levels (eight or more drinks per week or four or more drinks on one occasion). Project CHOICES uses a four-session intervention to achieve its results. For more information on the intervention and available resources, please visit Project CHOICES (Centers for Disease Control and Prevention) www.cdc.gov/ncbddd/fasd/research-preventing.html and www.cdc.gov/ncbddd/fasd/freematerials.html.

Screening and Brief Intervention (SBI)
This program, developed by Mary O’Connor and Shannon Whaley (2007) with a grant from the National Institutes of Alcohol Abuse and Alcoholism (NIAAA), found significant results in providing screening and brief interventions to women who report drinking during pregnancy. Training and Technical Assistance resources are available at www.phfewic.org Exit Disclaimer Graphic or by contacting projects@phfewic.org. Screening forms and brief intervention manuals are also available for download in English, Spanish, Vietnamese, and Chinese at no cost at www.phfewic.org/Projects/Care.aspx  Exit Disclaimer Graphic .

Parent-Child Assistance Program (P-CAP)
The Parent-Child Assistance Program (P-CAP) uses an intensive paraprofessional home visitation model to reduce risk behaviors in women with substance abuse problems over a three-year period. The focus is not simply on reducing alcohol and drug use, but also on reducing other risk behaviors and addressing the health and social well being of mothers and their children. For more information, contact Therese M. Grant, Ph.D., Director, granttm@u.washington.edu  Exit Disclaimer Graphic or visit the Parent-Child Assistance Program (Fetal Alcohol and Drug Unit, University of Washington): depts.washington.edu/pcapuw/ Exit Disclaimer Graphic.

CDC Regional Centers PDF Icon
Five university-based Fetal alcohol Spectrum Disorders (FASD) regional training centers (RTCs) have been funded for a three-year cooperative agreement (2008–2011) to develop, implement, and evaluate new training programs, and/or enhance current training programs for medical and allied health students and practitioners regarding the prevention, identification, and treatment of fetal alcohol spectrum disorders (FASD). Four RTCs were previously funded from 2002–2008. These four former RTCs developed seven core competencies in collaboration with CDC and with the National organization on Fetal alcohol Syndrome (NOFAS) as well as the FASD Competency Based Curriculum Development Guide for Medical and Allied Health Education and Practice, available at www.cdc.gov/fasd. The new RTCs will be expanding upon the prior RTCs’ efforts and reaching new geographic areas and audiences.

Bruin Buddies Volunteer
Program Friendship training: Many children with an FASD have difficulty making friends, keeping friends, and engaging in social interaction with others. This type of training teaches a variety of skills, including how to interact with friends, how to enter a group of children already playing with each other, help with in-home play dates, and ways to avoid conflict and use negotiation skills. A research study called "Project Bruin Buddies" evaluated this type of training and found that it could significantly improve children's social skills and decrease problem behaviors.

This program is designed specifically for the UCLA community who desires to do college outreach to middle school and high school students from educationally disadvantaged backgrounds.

Addiction Technology Transfer Center National Office Exit Disclaimer Graphic
The Addiction Transfer Technology Center Network is dedicated to identifying and advancing opportunities for improving addiction treatment. The vision is to unify science, education and service to transform the lives of individuals and families affected by alcohol and other drug addiction.

One Sky Center, The American Indian/Alaska Native National Resource Center for Substance Abuse  Exit Disclaimer Graphic
The mission of the One Sky Center is to improve prevention and treatment of substance abuse among Native people, by promoting culturally appropriate services, identifying and disseminating evidence-based practices, and providing training and technical assistance.

Online Clinic Exit Disclaimer Graphic
The Online Clinic has information on books, Web sites, and other resources and patient referrals. Various tools are available, including an online calculator for estimating costs of FASD in your community.

FASD Screening and Diagnosis Exit Disclaimer Graphic
The Washington State Fetal Alcohol Syndrome Diagnostic & Prevention Network (FAS DPN) is a network of FASD diagnostic clinics linked by the core clinical/research/training clinic at the Center on Human Development and Disability at the University of Washington in Seattle, WA. Each clinic in the network uses the 4-Digit Diagnostic Code as the diagnostic method. The mission of the FAS DPN is primary and secondary prevention of FAS through screening, diagnosis, intervention, training, education, and research.

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Family and Support Groups

The Circle of Hope: A Mentoring Network for Birth Mothers  Exit Disclaimer Graphic
The Birth Mothers Network (BMN) was established to support and serve birth families affected by Fetal Alcohol Spectrum Disorders (FASD). Their vision is to become a strong national network that will work to mentor women who are struggling with addiction and with the issues of having a child or children with an FASD; their mission is to increase understanding and support for birth mothers and to strengthen recovery for women who drank during their pregnancies, as well as to support their families, and their goals are to (1) improve and strengthen the lives of birth families, (2) provide peer support for birth families, and (3) decrease the stigma, blame, and shame that birth families may experience.

In support of the BMN's efforts, NOFAS sponsors The Circle of Hope (COH) for women in recovery from drug and/or alcohol addiction who have a child/children with an FASD. They refer to these women as "Warrior Moms."

Self Advocates with FASD in Action Network (SAFA)  Exit Disclaimer Graphic
The self advocacy group was initially established to build and support a network of people with FASD to organize, attend, and help facilitate a self-advocacy track at the annual Building FASD State Systems (BFSS) Conference. The conference supports the Center's legislative mandate to provide technical assistance to communities developing FASD systems of care. In March 2011, The Arc and the Center worked together to formally establish the Self Advocates with FASD in Action (SAFA) Network.

FAS Community Resource Center Exit Disclaimer Graphic
The FAS Community Resource Center offers resources related to FASD, such as support groups for families, playgroups for children with FASD, advocacy, materials and training for families and professionals, consultation, and collaboration with community organizations.

FASEout Training Modules (FASEout) Exit Disclaimer Graphic
Canadian Institute of Child Health (CICH) Exit Disclaimer Graphic
FASEout Training Modules is part of the Canadian Institute of Child Health. This site provides PowerPoint training modules used in the FASEout Project and are provided for your use in training. FASEout, presentations have speaking notes and we encourage you to adapt this material for your own use. Additional presentations are included for informational purposes only. All presentations require a familiarity with the subject.

FASworld Exit Disclaimer Graphic
FASworld is an international alliance of parents and professionals dedicated to the prevention of fetal alcohol spectrum disorders. FASworld Canada works with the Fetal Alcohol Syndrome Community Resource Center Exit Disclaimer Graphic in Tucson to coordinate work in worldwide awareness.

Text4Baby Exit Disclaimer Graphic
To help more pregnant women and new moms get information about caring for their health and giving their babies the best possible start in life, the National Healthy Mothers, Healthy Babies Coalition (HMHB) launched text4baby, the first free health text messaging service in the U.S. Text4baby supports moms by providing accurate, text-length health information and resources in a format that is personal and timely, using a channel she knows and uses. Over 85% of Americans own a cell phone and 72% of cell users send or receive text messages.

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Research Organizations and Universities

Association of University Centers on Disabilities (AUCD) Exit Disclaimer Graphic
AUCD (formerly the American Association of University Affiliated Programs for Persons with Developmental Disabilities) is a nonprofit organization that promotes and supports the national network of university centers on disabilities.

Center on Alcoholism, Substance Abuse, and Addictions, University of New Mexico (CASAA) Exit Disclaimer Graphic
CASAA conducts various research projects, including projects related to FASD. In addition, CASAA supports the Fetal Alcohol Syndrome Prevention Project Exit Disclaimer Graphic, which coordinates public education campaigns, community projects, and social change and advocacy efforts.

Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD) Exit Disclaimer Graphic
The purpose of this consortium is to inform and develop effective interventions and treatment approaches for FASD, through multidisciplinary research involving basic, behavioral and clinical investigators and projects. We hope to develop an infrastructure to foster collaboration and coordinate basic, clinical and translational research on FASD. We welcome your input and your feedback.

Fetal Alcohol and Drug Unit, University of Washington Exit Disclaimer Graphic
The Fetal Alcohol and Drug Unit is a research unit focused on prevention, intervention, and treatment of fetal alcohol syndrome and other alcohol-related birth defects.

Maternal Substance Abuse and Child Development Project, Emory University  Exit Disclaimer Graphic
The mission of the Maternal Substance Abuse and Child Development Project is to provide education and support to caregivers and professionals to prevent problems due to prenatal alcohol and drug exposure and to further the scientific understanding of the effects of exposure.

National Center for Education in Maternal and Child Health, Georgetown University (NCEMCH) Exit Disclaimer Graphic
NCEMCH provides national leadership program development, education, and knowledge to improve the health and well-being of the Nation's children and families.

Organization of Teratology Information Specialists (OTIS) Exit Disclaimer Graphic
OTIS is dedicated to providing accurate evidence-based, clinical information to patients and health care professionals about exposures during pregnancy and lactation. The organization serves to provide education, to conduct relevant research and to support teratology information services throughout North America.

Research Portfolio Online Reporting Tool Expenditures and Results (RePORTER)
RePORTER is an electronic tool that allows users to search a repository of NIH-funded research projects and access publications and patents resulting from NIH funding. Information found in RePORTER, including projects related to fetal alcohol syndrome and effects of alcohol on the fetus, and it is drawn from several databases–eRA databases, Medline, PubMed Central, the NIH Intramural Database, and iEdison.

Research Society on Alcoholism Fetal Alcohol Syndrome Study Group (RSoA) Exit Disclaimer Graphic
The FAS Study Group's members include approximately 150 clinicians and researchers. The group focuses on the etiology of fetal alcohol syndrome, characteristics of fetal alcohol spectrum disorders (FASD), and ways to improve the lives of children with FASD.

Washington State Fetal Alcohol Syndrome Diagnostic & Prevention Network (FAS DPN) Exit Disclaimer Graphic
The FAS DPN is a network of four WA State community-based interdisciplinary FASD diagnostic clinics linked by the core clinical/research/training clinic at the Center on Human Development and Disability at the University of Washington in Seattle, WA. Susan J. Astley, Ph.D., Professor of Epidemiology/Pediatrics, is the Director of the FAS DPN. The network was established in 1993 through Washington State Senate Bill 5688 and support from the CDC, March of Dimes, Chavez Memorial Fund, and WA State Department of Social and Health Services. Each clinic in the network uses the same interdisciplinary approach to diagnosis and the same systematic diagnostic method-the 4-Digit Diagnostic Code. The WA State FAS DPN began diagnosing patients in 1993 and has diagnosed over 2,500 patients to date.

The mission of the FAS DPN is FASD prevention through FASD screening, diagnosis, intervention, research, and training.

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